He called with the news that Jovan will be admitted to the hospital again on Monday, 21st April. His head wound has not healed and they will need to open him up again. This time round, the availability of factor is very crucial. To compound matters, his type is not identified, though from the fact that he responded to cryoprecipitates would indicate type 'A'.
With some progress in respect to setting up the foundation, we are very far from realising our goal of identifying haemophiliacs, providing necessary support (including diagnosis and factors) - the foundation is not registered as yet. Progress made so far -
- we have reserved the name 'Haemophilia Foundation of Uganda', for 30 days, with the registrar
- we now have a P. O. Box number, in my personal name presently but will be handed over to the Foundation 9once it is registered)
- we have identified a newspaper that may print an article about haemophilia & the foundation in their paper
- I am meeting with lawyers today, to complete the paperwork for registering the foundation
Hope Jovan hangs on till we are able to do something.
1 comment:
Dear Satish,
I applaud your efforts to create not only a nonprofit for those with hemophilia in Uganda, but for creating hope and a future. We will assist you in every way we can. You've taken on the mantle of leadership, which sometimes can feel like a burden, but in truth, the heavier the mantle, the stronger you will become. Congratulations!
Laurie Kelley
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