Friday, April 11, 2008

Sewungu Augustine Jovan

I met Sewungu Augustine Jovan's father today and he is a Headteacher at St. Mary's Primary School, Kibuye - Makindye.

He is not sure of Jovan's haemophilia type, but from the fact that Jovan is being administered Cryoprecipitate whenever he bleeds, I think he is Haemophilia A, since cryoprecipitates donot work in Haemophilia B cases.

I have pasted Jovan's pictures (when he was hospitalised in March for a head bleed) and discharge report below. The family thought that they lost him. Wonder how they operated him without factors and pray that he is not infected with other ailments (in this country the chances of contracting HIV etc are really high).

Also, he has got a sister. When I asked the father whether she was checked for carrier state, he was surprised to know that female children can be carriers. So, awareness and education are going to be very important areas that will need working on.

Another good that came from the meeting is that Augustine will work for the Foundation, Since, he is involved with a teachers association and a headmasters association, we would be able to spread awareness about the Foundation through schools.

Through the schools and through Doctors, I think we should be able to unearth more families and haemophiliacs.



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